Percepción de diversos sectores sociales de Colombia sobre los biobancos con fines de investigación

Translated title of the contribution: The perception of different social agents in Colombia regarding biobanks for research purposes

Norma Cecilia Serrano, Elizabeth Guío-Mahecha, Silvia Becerra-Bayona, María Lucrecia Luna-González, Doris Cristina Quintero-Lesmes

Research output: Contribution to journalArticlepeer-review

1 Scopus citations

Abstract

Introduction: Biobanks for research purposes are public assets that require active participation from all interested parties; therefore, it is important to discern and investigate the perception that the general public in Colombia has with regards to their participation in a biobank. Objective: To question different healthy Colombian social agents about the perception they have on donating human biological material to be stored in a biobank for future research purposes. Materials and methods: We conducted an exploratory quantitative and qualitative research by means of an anonymous survey on healthy members of the Colombian community in order to evaluate their knowledge and stances related to biobanks. Results: Three hundred sixty-eight (368) individuals completed the survey, including health-care researchers, lawyers and members of research ethics committees. Ninety-six percent (96%) of the subjects stated their willingness to donate biological material to biobanks, although 60% expressed distress about their samples being used for certain research activities, mainly human cloning. Even though about half of the participants reported knowing what a biobank is, less than 3% of the individuals had a clear concept of them. Conclusion: Participants showed their willingness to donate and store their biological material for research purposes. Similarly, they expressed their opinion about issues related to the management of biobanks. It is necessary to take into account the opinions of the general public in the development of policies that regulate biobanks for research purposes in Colombia.

Translated title of the contributionThe perception of different social agents in Colombia regarding biobanks for research purposes
Original languageSpanish
Pages (from-to)569-576
Number of pages8
JournalBiomedica
Volume38
Issue number4
DOIs
StatePublished - 2018

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