TY - JOUR
T1 - Percepción de diversos sectores sociales de Colombia sobre los biobancos con fines de investigación
AU - Serrano, Norma Cecilia
AU - Guío-Mahecha, Elizabeth
AU - Becerra-Bayona, Silvia
AU - Luna-González, María Lucrecia
AU - Quintero-Lesmes, Doris Cristina
N1 - Publisher Copyright:
© 2018
PY - 2018
Y1 - 2018
N2 - Introduction: Biobanks for research purposes are public assets that require active participation from all interested parties; therefore, it is important to discern and investigate the perception that the general public in Colombia has with regards to their participation in a biobank. Objective: To question different healthy Colombian social agents about the perception they have on donating human biological material to be stored in a biobank for future research purposes. Materials and methods: We conducted an exploratory quantitative and qualitative research by means of an anonymous survey on healthy members of the Colombian community in order to evaluate their knowledge and stances related to biobanks. Results: Three hundred sixty-eight (368) individuals completed the survey, including health-care researchers, lawyers and members of research ethics committees. Ninety-six percent (96%) of the subjects stated their willingness to donate biological material to biobanks, although 60% expressed distress about their samples being used for certain research activities, mainly human cloning. Even though about half of the participants reported knowing what a biobank is, less than 3% of the individuals had a clear concept of them. Conclusion: Participants showed their willingness to donate and store their biological material for research purposes. Similarly, they expressed their opinion about issues related to the management of biobanks. It is necessary to take into account the opinions of the general public in the development of policies that regulate biobanks for research purposes in Colombia.
AB - Introduction: Biobanks for research purposes are public assets that require active participation from all interested parties; therefore, it is important to discern and investigate the perception that the general public in Colombia has with regards to their participation in a biobank. Objective: To question different healthy Colombian social agents about the perception they have on donating human biological material to be stored in a biobank for future research purposes. Materials and methods: We conducted an exploratory quantitative and qualitative research by means of an anonymous survey on healthy members of the Colombian community in order to evaluate their knowledge and stances related to biobanks. Results: Three hundred sixty-eight (368) individuals completed the survey, including health-care researchers, lawyers and members of research ethics committees. Ninety-six percent (96%) of the subjects stated their willingness to donate biological material to biobanks, although 60% expressed distress about their samples being used for certain research activities, mainly human cloning. Even though about half of the participants reported knowing what a biobank is, less than 3% of the individuals had a clear concept of them. Conclusion: Participants showed their willingness to donate and store their biological material for research purposes. Similarly, they expressed their opinion about issues related to the management of biobanks. It is necessary to take into account the opinions of the general public in the development of policies that regulate biobanks for research purposes in Colombia.
KW - Biological specimen banks
KW - bancos de muestras biológicas
KW - consentimiento informado
KW - ethics
KW - informed consent
KW - opinión pública
KW - privacidad
KW - privacy
KW - public opinion
KW - ética
UR - http://www.scopus.com/inward/record.url?scp=85060175381&partnerID=8YFLogxK
U2 - 10.7705/biomedica.v38i4.4327
DO - 10.7705/biomedica.v38i4.4327
M3 - Artículo Científico
C2 - 30653871
AN - SCOPUS:85060175381
VL - 38
SP - 569
EP - 576
JO - Biomedica
JF - Biomedica
SN - 0120-4157
IS - 4
ER -